What is FASD?

© Greg Cruey

Greg Cruey, Greg Cruey
Among the less talked about disabilities encountered in education today is Fetal Alcohol Spectrum Disorder, or FASD. The fact that it is not a topic of conversation doesn

February 28, 2006 - Among the less talked about disabilities encountered in education today is Fetal Alcohol Spectrum Disorder, or FASD. The fact that it is not a topic of conversation doesn't mean that it is uncommon.

Outside a medical setting the technical definitions often get blurred in conversation and literature, but it is important to make a few distinctions. FASD is a broad term that covers almost any physical, behavioral, or educational problem that is thought to be the result of exposure to alcohol in the womb. Fetal Alcohol Syndrome, on the other hand, is a more specific and profound term. According to the Centers for Disease Control (CDC), a diagnosis of Fetal Alcohol Syndrome (FAS) must include: at least three facial abnormalities; growth deficits for both height and weight; and central nervous system abnormalities. Some other terms (and acronyms) get used occasionally, as well:

Since FASD is the broadest of the terms and covers basically anyone who suffers from a problem related to prenatal alcohol exposure, I'll use that term. But readers should be aware that the term FAS and FASD are used almost interchangeable much of the time.

FAS is a tragic problem in light of its preventable nature. A group called Better Endings New Beginnings has some relatively up to date U.S. statistics on FASD available. About four million babies are born in the U.S. each year. About one out of a hundred (40,000) have FASD. Of these, about one in five could be medically diagnosed as having FAS. That's 8,000 babies born each year with FAS. That means that about 100,000 children with FASD between the ages of five and 18 are in school are in school today.

Learners with FASD tend to have one or more of the following obstacles to effective learning:

The National Organization for Fetal Alcohol Syndrome, NOFAS, has some excellent suggestions available online for instructional strategies to use when working with FASD students. They range from simple ideas like preferential seating to assisting with social behaviors and modifying curriculum.

There is also an excellent listserv for FASD available at http://www.faslink.org/faslink.htm. I subscribe to the listserv. It is archived at the address above and there are instructions as to how to subscribe to it there. The archive is searchable - making it a valuable Internet resource on the subject since the listserv is now ten years old. And the listserv has the advantage of being active and somewhat international. And because of the long history of the listserv it has a feel of community. People share personal information and views that, while sometimes creating discussion threads that are off topic (and heated), result in a very useful Internet experience for people who want to follow FASD issues and events.

Copyright © 2006, Greg Cruey and Suite 101. All rights reserved. Any unauthorized use will constitute an infringement of copyright.


The copyright of the article What is FASD? in Special Needs Education is owned by Greg Cruey. Permission to republish What is FASD? in print or online must be granted by the author in writing.



Comments
Feb 28, 2006 5:19 AM
Irene Taylor :
Hello Greg,

I read your article, "What is FASD?" with great interest. This is a long-standing problem that really isn't talked about as much as it should be. Years ago I had a student with FAS - and it was really pretty "hush-hush" around school. We all knew there was a problem, but that many years ago it wasn't so readily named.

That student suffered from almost every symptom you describe! He was a loveable but very challenging student to work with.

I know readers will appreciate your discussion of FASD and the links you've provided as well.

Irene
Mar 6, 2006 4:44 PM
Kate Copsey :
Greg
The list of symtoms that you give for FASD are very similar to those of Autism spectrum. As both are assumed to be/may be a reaction to a toxic substance, are there some general guidelines that distinguish the two.
Thank you
Mar 6, 2006 6:09 PM
Greg Cruey :
Yes and no. The narrow terms, Fetal Alcohol Syndrome on the one hand and Autism on the other, both have pretty clear definitions. For example, there are facial abnormalities in Fetal Alcohol Syndrome that MUST be present for a diagnosis. The phrase "Spectrum Disorder" has been attached in the last decade or so to a number of health problems as a way of expanding the definitions to bring consideration to borderline cases. Both the <A HREF="http://www.faslink.org/faslink.htm" target=sne>FASD listserv</A> and a <A HREF="http://www.nas.com/downsyn/dslistserv.html" target=sne>Down syndrone listserv</A> I subscribe to have had discussion recently about the problem of how to decide if a child ALSO had autism. The archives of the listserves are worth searching; feed in the term "autism." But my perception is that the problem is unresolved at the moment. Or perhaps a better statement would be that it takes a medical expert evaluating an individual child to unravel the complexities involved...
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